Not A Diagnosis

So many times people dehumanized us, forgetting that behind the diagnosis and insesant illness there is a person. A person that grieves after every new diagnosis, a person that lives with pain, a person that feels. I’ve spoken to several of you in recent weeks and I was inspired… I decided to do a small expressive piece … Here it is…
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I’m Fine Curse

A lack of transparency results in distrust and a deep sense of insecurity.

Dalai Lama


Hello World!

How many of us know the statement “I’m Fine” all to well? Without hesitation I can say, I do! When you say it, how many of us are ACTUALLY fine? I know that at least 95% of the time when I say the words “I’m Fine” I am surely NOT fine.

Then why do we say it? Many have reasons I will not claim to know but let me explain mine. Having a chronic illness becomes routine to us Spoonies. I say routine in the most comical of ways. The never ending stretch of doctors visits, medications, side effects, pain, surprise events of the most random things your body does. When you have a chronic illness, it becomes apparent very quickly that you have to deal with any misgivings you have in order to help your family and friends to deal. It is a sad truth, but you have to be come Dr. House and a therapist for those around you. You would think that you are the one with the illness but if someone loves you they take everything that you are going through just as personal. Sometimes I can not deal with others emotions because I am just too busy dealing with my own. As selfish as that sounds to someone like myself, it is the truth and it is OKAY!

So some days, when someone that loves me ask’s “How are you doing today?” I say, I’m Fine. I’m not necessarily saying it because I don’t want them to know whats going on, but I am tired. If I told everyone the truth every time they asked me how I was doing, trust me it would get old. There is not one day that goes by that I don’t feel some kind of something going on with my body. There is not one day that goes by that I don’t know that I have an illness. So some day’s I like to say I’m Fine for ME! Hey, I’m FINE my people! I am alive, I am breathing, and I am mobile.

I won’t sit here and manipulate the situation and state that I have never used i’m fine to get someone out of my face. I also will not say that I have never used it as a defense mechanism, because quite frankly I HAVE! Have I mentioned that I am human? All in all though, saying the words i’m fine steam from many different reasons both good and bad. Unless you have a chronic illness you may not understand this. If you love someone with chronic illness this may make you mad, because you want to know the truth. Understand this, chronic illness is no laughing matter. Some days the shear thought of getting out of bed is brutal. Unless you understand that statement to the core, do not judge. Some days we just want to think we are fine, some days we don’t have time to answer 100 questions or take advice that was not asked for, and some days we use it as a defense tool to keep out everyone while we deal with our own misgivings and pain.

Remember just because we look “Fine” on the outside, does not mean we are. We are all in fact still human.


Love you my fellow spoonies!

Undefeated Diva

Today’s soul soothing quote!

Innovation is NOT born from the dream, innovation is born from the struggle!

Remember this in the middle of your struggles!
Remember this in the middle of a storm!
Remember this in the middle of chaos!

For the only certain thing in life is CHANGE. To obtain positive and life altering change, sometimes chaos, storms, and struggles are necessary!

Undefeated Diva