2:26 AM

Another night spent awake. If I was honest with myself, I would say it’s been going on for weeks. Waking up in the middle of the night/wee hours of the morning. I sleep maybe an hour or two straight and then wake. It has become utterly frustrating . I’d like to pinpoint why this round insomnia is happening, but I seem to be coming up short. Some nights it’s pain related, other nights my thoughts get the best of me. Then there are those nights where there is nothing… no thoughts, no excessive pain… nothing at all. I just lye here, awake. 

Most wouldn’t understand. I’ve tried everything from bedtime routines and baths before bed to medicines and teas. My Sour Sop works the best, but it’s still not full proof. 

So I am here, hoping my fellow insomniacs are  doing well! 

Xoxo,

Me

Just get some sleep…

Me: “I am Exhausted”

Them: “Get some sleep. Rest. Oh just take a nap.”

If it were only that simple. There is tired and then there is the exhaustion that many of us with a Chronic Illness feel. It is the nausea inducing, body shaking, fever generating, limb weakness type of exhaustion. For me, my exhaustion can sometimes include breathing difficulties and neurological side effects such as dropping things, tripping (body imbalance), and fogginess. It is a concept that is difficult to grasp if one has not experienced it.

Sometimes resting or sleeping do infact help but more often than not it only places a bandaid on the situation. It is like plugging in your cellphone that is at 2% for 10 minutes to get just enough of a charge to make a call. You rest/sleep for 8 hours… and sometimes you have just enough energy to do just one activity. You save up all of your energy for one thing. We are not talking about saving up your energy for one big trip to Disney, no. I am talking about you sleep 8 hours to do something like clean the bathrooms or cook dinner. This is of course if you can get to sleep, as many of us are experiencing side effects from medications or in such pain we can not get comfortable.

I wish I was joking. I wish that everything I was saying was a harsh dramatized dream, but it is not.The last time I was experiencing this level of exhaustion I was being newly diagnosed. I have to admit that I have been very lucky over the years as I have been able to kind of gage when I was exerting myself and I would plan appropriately. I worked full-time, went to school full-time, and maintained some level of friendships. Now that I think about it, I am not sure how I did it… but I did. Now a days I can’t seem to make it until 3pm without needing to nap for just a moment. When I was working in an office, many of times I would take my lunch break and nap in my car.

I have been looking up some different shakes and teas to help with my symptoms. Think I will make one in the morning and see if it helps even a little. I’ll share the process! Stay strong my fellow spoonies. I am with you… Have a good night!

XOXO,

Exhausted Me.

Insomnia Funnies

I am pretty sure at this rate I will reach some form of hysteria by midweek…  I found myself laughing at the following pictures a little harder than I should have. 

   
 
I wonder if I would find them funny once I get a decent amount of sleep? Furthermore I am here to inform you my friends that penguins DO in fact have knees! Just in case you were all curious. Lol

Another night, another tortuous night of rapid fire thoughts that seem to never end. I believe I have not only reviewed my life as a whole, but have caught up on my research and revised my life plan ten times over. I’ve also recreated my bucket list at least five times. Who is with me out there? What have you done? Have you designed the next breakthrough in modern science? I swear I am much smarter between the hours of 1-3am than I am during “normal” working hours. 

On a not so funny note, due to what seems to be my new power hours my pain level and swelling are on the rise.  My brain and body are betraying themselves yet again. I am so sorry to those of my fellow brothers and sisters that deal with this on a much grander scale then I am. May the beauty of sleep find us all… And soon! 

Xoxo, UD

Sleep… Not!

Sleep is the best meditation 

-Dalai Lama
Dear Sleep,

I miss you. For all those times I fought NOT to take you as a child…. I AM SORRY! Please forgive me and come back to me. I promise to love you and take care of you for the rest of my life! 

Yours Truly,

Me
Good Morning Everyone! 

Sleep deprivation is real my people, but what am I saying most of you know that. I have always suffered with sleep difficulties as an adult, even more so after my diagnosis. I have never understood how ones body could be so very exhausted, yet not give in to sleep. Well you add an infant to that mix and you have one hell of a fun ride. I am totally and utterly amazed at the human body and its ability to function. 

If you see me on the streets and I do not make sense to you, just tell me you love me , hug me, and send me to bed! 😂 I had a friend that I was talking to last evening do that very thing!

On a fun note, I have a graph of my sleeping patterns! How cool is this. I was gifted a Fitbit a week ago and it has come in so handy with my sleep patterns. Check it out guys. I average about 3 hours and 40 minutes of sleep give or take a night. Not consecutive sleep of course, but over the course of the 8 plus hours I am in bed. Very cool apparatus… Have been considering getting the one with the heart rate. 
So guys, long story short… Get your sleep! If not you may be like me. Speaking jibberish and looking crazy! 🙂 Until then I will go to breakfast with my little man this morning as he has decided to shower me with the most beautiful conversation. 
Xoxo,

Undefeated, super exhausted, jibberish speaking Diva

  

Healthy Alternatives- Miss Lotties Farm Review

A healthy outside starts from the inside.

Robert Urich

** Disclosure: Remedies are not one size fits all, this is what worked for me**

To say I have never felt so welcomed in someones home, would be an understatement. After several Facebook conversations with Robin, the matriarch of Miss Lotties Farm the time had come to meet her. The excitement was beyond words.

Let me start at the beginning. Hey, I live with Lupus just in case none of you knew! The pain that has accompanied my Lupus has been astronomical as of late. My amazing father (President, Technical Edge Electric) so happened to be doing some work at Miss Lotties Farm, when a conversation was had concerning what the farm represented and his beautiful daughter. (Hell Yes… That’s me 🙂 )

After doing what of course was a phenomenal job by my father, he “harassed” me to come by and drop something off. When he arrived he handed me an insulated bag and instructions. He proceeded to explain the day’s happenings and how Miss Lotties Farm came to be and why what looked like a suspicious substance was now sitting on my counter.  He explained that the suspicious substance were in fact leaves in the package, called Anamu (what a relief I was not going to be a suspect in any crime 🙂 )He went on to tell me about what Robin told him and how she wanted to be sure I researched all of the plants that Miss Lotties Farm has, prior to making any teas from the leaves. This woman obviously did not know I had a 10 degree PhD from Google University!!!

It took several day’s to finally sit and research and actually make the tea. After day 1 of drinking the tea, I was pissed at myself that I did not make the tea sooner! Although it did not fully expel my pain, it allowed for several hours of uninterrupted sleep. About a week or so after their initial meeting Robin did the one best customer service move, she reached out to both of us personally to see how things were going.  After finding her email and speaking to her for several days, we set up a face to face meet and greet. There was no way I would keep this information to myself if it actually worked but I had to be sure that I went to the farm personally and legitimized the process before sharing it with all of you!

*See peeps, I have your back. Always know I will never put something out there that I have not tried personally.*

So back to the top. Myself and a friend drove the 45 minutes or so from my home to Miss Lotties Farm. The farm itself sits on the land just behind their home, which is actually their back yard but it’s to big to constitute as a “back yard” more like a back half of a football field. Before even getting out of the car completely, I already felt welcomed. We were greeted by Robin and Ron standing at their door, and ushering us in to their beautiful home. We quickly sat on their couches and without hesitation Robin says, “I do not know much about Lupus, what is Lupus?”. I respected that she did not attempt to hide behind some Web MD facts, or some hear say. She gave me the opportunity to do what many don’t, explain that it’s not a one size fits all disease!

After a nice conversation, we were ushered outside to what was the most beautiful sight. Rows and rows of healing possibilities just outside the confines of their porch. Now, Miss Lotties Farm carries three types of trees, Anamu, Moringa, and SourSop. Both Robin and Ron walked with us and discussed the inner workings of the farm and how it came to be. We were shown to the edge of the farm and were explained the plants, the way they run the farm, and the inner functionalities of each plant they have. Not once did Robin or Ron pretend they knew everything there is to know about healing alternatives, but for just starting the farm 14 months ago they were well versed in positivity and finding natural ways to heal the ailments. They both shared several amazing stories about how the plants helped people and you know what made me smile most? The fact that telling the stories brought such amazing smiles to both of their faces. Listening to both of them and visiting the farm cemented what I already knew. It cemented that these guys were not doing this for the money or notoriety, they were in the business of helping people and they took immense pride in this.

As the visit was coming to an end, I was almost saddened that I had to leave. I felt as though I had made friends for life. I left with a bag of each plant leaves and promised them I would return soon. On my way hope I went over the day’s events and smiled at the endless possibilities. I looked down at my packages and swore to my body I would do whatever it took to heal it.

Many of you out there know that sleep deprivation is one of the top complaints from someone with a Chronic Illness. I have made tea from Soursop leaves and have to say… I have slept every night I have had the tea, and I mean slept! For someone who was so very skeptical, I am a believer! Although, I still approach every situation with a skeptical eye because remember “If I can’t trust my body, how am I supposed to trust anything else?” Christina Gorgon.

I hope if any of you get anything from this, it’s to do some research on some natural alternatives. If you decide to order from Miss Lotties Farm, know that I have personally gone there and what you will get from them is nothing short of stellar!

Heres to kicking Lupus or your chronic illnesses ass!

XOXO,

Undefeated Diva!

 

Some Information:

 

Electrical Company Mentioned:

Technical Edge Electric:

http://technicaledgeinc.com/about-technical-edge-inc-electrical-contractors/

 

A small snippet of how Miss Lotties Farm came to be:

“January 2013 our 8 year old great niece Lottie had some health issues, so her mother put her on herbal supplements. Although they were purchased from a supplier’s website outside the United States, she made some improvements. Our family had some concerns regarding the quality of the herbs, such as how and where they were being grown and processed. ”

 

For the rest of the story, please visit:

Miss Lotties Website:

http://www.misslottiesfarm.com

You can also get up to date information at:

Miss Lotties Facebook:

https://www.facebook.com/pages/Miss-Lotties-Farm/1441952372724251

 

Below I have included a small bio for two of the three plants at Miss Lotties Farm:

Anamu:

ANAMU
HERBAL PROPERTIES AND ACTIONS
Main Actions Other Actions Standard Dosage
  • reduces pain
  • reduces spasms
Whole herb
  • kills bacteria
  • reduces anxiety
Infusion: 1/4 to 1/2 cup 2-3
  • kills cancer cells
  • reduces fever
times daily
  • kills fungi
  • lowers blood sugar
Capsules: 1-3 g daily
  • reduces inflammation
  • kills insects
  • kills leukemia cells
  • promotes menstruation
  • reduces free radicals
  • sedates
  • prevents tumors
  • increases perspiration
  • kills viruses
  • expels worms
  • kills Candida
 
  • increases urination
 
  • enhances immunity
 

 

SourSop:

Family: Annonaceae
Genus: Annona
Species: muricata
Synonyms: Annona macrocarpa, A. bonplandiana, A. cearensis, Guanabanus muricatus
Common names: Graviola, soursop, Brazilian paw paw, guanábana, guanábano, guanavana, guanaba, corossol épineux, huanaba, toge-banreisi, durian benggala, nangka blanda, cachiman épineux
Part Used: Leaves, fruit, seeds, bark, roots

From The Healing Power of Rainforest Herbs:

 

GRAVIOLA
HERBAL PROPERTIES AND ACTIONS
Main Actions Other Actions Standard Dosage
  • kills cancer cells
  • relieves depression
Leaves
  • slows tumor growth
  • reduces spasms
Infusion: 1 cup 3 times daily
  • kills bacteria
  • kills viruses
Tincture: 2-4 ml 3 times daily
  • kills parasites
  • reduces fever
Capsules: 2 g 3 times daily
  • reduces blood pressure
  • expels worms
  • lowers heart rate
  • stimulates digestion
  • dilates blood vessels
  • stops convulsions
  • sedates

Rob, Myself, and Ron

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